Parents and professionals alike tell me that parental distress is a major challenge during a child's treatment. Who wouldn't be in distress? When your child is being hijacked by one of these deadly brain illnesses it is terrifying. Parents are at a loss. What to do? Everyone TELLS parents to get their oxygen mask on, but how? It's uncommon still for anyone on the child's treatment team to give parents the tools they need to get their own oxygen masks on. And who is providing accountability and support? Check out my short video on first steps for getting the oxygen mask on.
Friday Nov 9 - Panel Moderator, "Finding Our Best During the Days That Feel the Worst: Diagnosis D
ay, Hospital Admission, End of Life Panel Discussion"
Saturday Nov 10 - Panel Participant, "The Path to the Diagnosis"
Saturday Nov 10 - Presenting "Reducing Caregiver Distress and Increasing their Capacity."
There will be dozens of presenters, if this is something you'd like to share, I've made it easy to share:
Receive #caregiving support and solutions from others who understand at the Third Annual National Caregiving Conference: https://www.caregiving.com/ncc18/ #ncc18